Resources

View, Download & Share with Your Hospital

SCAD Alliance white paper on emergency care and SCAD:
The Vital Role of the Emergency Department in Improving Outcomes of SCAD

Cleveland Clinic Q&A on SCAD:

SCAD – Spontaneous Coronary Artery Dissection Cleveland Clinic webchat, (Esther Kim, MD 07/01/16)

SCAD – Spontaneous Coronary Artery Dissection Cleveland Clinic webchat, (Dr. Esther Kim 07/24/15)

Connect with Us in Our Social Networks

The best way to access support is to stay in touch. By “liking” the SCAD Alliance Facebook page, you will receive notifications about SCAD-related topics and be the first to hear SCAD Alliance news. We are also on Twitter and Pinterest.

Consider an Online Support Group

Several SCAD survivor groups on the Internet give you the opportunity to share your story, benefit from support, and help others. Each community is unique, so explore and find the one that’s right for you!

Knowledge is Power, and Then Some

This webchat addresses the top concerns of patients and caregivers: Cleveland Clinic HealthHub. The following links offer additional information on SCAD and associated conditions. As new resources are created or identified, they will be added to the sections below, so please check back often.

Clinical Trials of Spontaneous Coronary Artery Dissection (SCAD)

An international “virtual” registry and DNA biobank are underway at Mayo Clinic, in Rochester, Minnesota.

Massachusetts General Hospital in Boston, features SCAD care and a research study through its Institute for Heart Vascular and Stroke Care.

At Intermountain Medical Center in Salt Lake City, UT, a Spontaneous Coronary Artery Dissection (SCAD) Research Group has been launched.

In Canada, research of SCAD and FMD is underway at Vancouver General Hospital at the University of British Columbia.

In United Kingdom and European Union, the Leicester Cardiovascular Biomedical Research Unit (LCBRU) of the National Institutes of Health is the source for SCAD research opportunities, care and support.

At Victor Chang Institute in Australia, SCAD clinical trials are underway.

Associated Conditions

For information on other rare diseases that may also affect SCAD patients, see the following resources:

Fibromuscular Dysplasia (FMD)

Ehlers-Danlos syndrome, vascular type IV

Loeys-Dietz syndrome

Marfan syndrome

Mixed connective tissue disease