01 Mar Successful exhibit at NIH for Rare Disease Day

On February 27, 2015, SCAD Alliance participated in global Rare Disease Day by exhibiting at
NIH for the third consecutive year. In addition to meeting survivors and caregivers who stopped by to share their stories or learn more, SCAD Alliance Board Chair, Katherine Leon, met with Dr. Nakela Cook, Medical Officer, National Heart, Lung, and Blood Institute (NHLBI), and Kate O’Sullivan, Executive Director, NHLBI, who expressed their support of SCAD Alliance and brainstormed ideas for growth.