"SCAD Alliance is the 'heart' of collaborative SCAD science and progress. I volunteer to ensure that everyone understands that every blockage is critical, and we won’t rest until the cause of artery dissection is understood."
Spontaneous Coronary Artery Dissection, or SCAD, impacts the lives of both the afflicted and their families. It is most often misdiagnosed and can occur with no clear warning signs. SCAD Alliance is dedicated to understanding and managing this unforeseen condition and supporting those whom it has affected.
“I volunteer for SCAD Alliance because it is an organization that seeks to empower survivors with information, resources, and advancements in research by working with multiple institutions and individuals.”
“It is great to go to war with colleagues who are there every step of the way as aggressively as you are and you there as aggressively as they are.”
“Connecting with the SCAD Alliance website and Facebook page became my first line of hope. I found links to a wealth of current research. Best of all, I gained a new realization of strength and hope.”
“SCAD Alliance is the ‘heart’ of collaborative SCAD science and progress. I volunteer to ensure that everyone understands that every blockage is critical, and we won’t rest until the cause of artery dissection is understood.”
“I think we need to remind ourselves that we don’t know much about SCAD. So it’s important that we take care of ourselves, visit our doctors, and be very conscious of the fact that whatever problems we have could be related to our heart.”
“I volunteer to try to help everyone affected by SCAD, and to educate the medical community — particularly those in emergency medicine — to recognize and treat SCAD quickly and appropriately.”
“What comes to mind … advocate, resources, a lifeline, heart sisters. I volunteer so younger active people know they too are at risk. I volunteer to find the cause.”
“SCAD was a life-altering event that changed my life completely. I volunteer to be a part of that change for others. Knowledge is power!”
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In August, Ask the Experts covered SCAD and genetics. Our amazing volunteer panelists — Dr. Mark Lindsay, Dr. Amy Kontorovich, and Dr. Stan Henkin — were led by SCAD survivor and Board Member Rebecca Freeman. Access the recording through this link: SCAD and Genetics SCAD Alliance is very grateful to our panel for contributing their
Read MoreSCAD Alliance hosted our second “Ask the Experts” webinar to discuss post-SCAD physical activity and cardiac rehabilitation on Friday, July 10th, 2020. Access the webinar through our list of Ask the Experts recordings on our YouTube channel. Rebecca Freeman, MS, MPH, a two-time SCAD survivor, mom of two, and pediatric physician assistant, moderated the panel.
Read MoreOur new educational series, “Ask the Experts — A Conversation Hosted by SCAD Alliance” began Friday, June 5th at 4 p.m. ET. Listen now by clicking on this link to access the SCAD Alliance YouTube channel. The purpose of this new monthly Ask the Experts series is to offer support and information to survivors and
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