Deborah Daw Heffernan, a survivor of a heart attack caused by the rare disorder spontaneous coronary artery dissection (SCAD), is profiled on Huffington Post in a column, “This American Heart Month, Let’s Celebrate Survivors — Like Deborah” by Nancy Brown, CEO of American Heart Association. Heffernan published the book “An Arrow Through The Heart: One
Read MoreAs part of its mission to raise awareness about spontaneous coronary artery dissection, SCAD Alliance has released “Stop the Heartbreak,” a video that describes what a SCAD is, and how it is an under-recognized cause of acute coronary syndrome, heart attack and sudden cardiac arrest. The Alliance plans to release more educational materials like “Stop
Read MoreOn June 17, 2014, Nancy Brown, CEO of the American Heart Association, asked Rachel Doucette, executive director of SCAD Alliance, to tell her story through a guest column on Huffington Post entitled “SCAD: The Ultimate Heart Break.” The blog post states what spontaneous coronary artery dissection patients know all too well, which is our survival
Read MoreCo-founders Katherine Leon and Rachel Doucette will be discussing all things #SCADheart on Twitter tonight, as guests of the Health Communication, Health Literacy and Social Science Tweet chat moderated by Kathleen Hoffman, PhD. Dr. Hoffman is a great support to patients and advocates around the world through her tireless work via #HCHLITSS. Her team has
Read More“Join together for better care.” The theme of the 2014 Rare Disease Day events in Washington, D.C. captured the spirit of the rare movement to the essence. Participants came together to speak as one voice on behalf of the rare disease community, which includes more than 7,000 rare diagnoses. To offer perspective, one in 10
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